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The Patient Experience Library
Document title:
Understanding the experiences of family, friends and carers attending Recovery Colleges, focus group study
Source:
Cambridge University Press
Date:
2025
Details:
Family and friends (family carers) provide substantial support to those with mental ill health, often affecting their own well-being. Subsequently, family carers have their own recovery journeys. Research highlights numerous benefits of attending Recovery Colleges, but whether these apply for family carers remains unexplored. We aimed to explore family carers' experiences of attending Recovery Colleges across England, to understand current provision and how this might better include and support family carers.
Cambridge University Press
2025
Family and friends (family carers) provide substantial support to those with mental ill health, often affecting their own well - being. Subsequently, family carers have their own recovery journeys. Research highlights numerous benefits of attending Recovery Colleges, but whether these apply for... [more]
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https://pexlib.net/?247830
The Patient Experience Library
Document title:
Research Engagement Network, Evaluation of Phase 1
Source:
Healthwatch Essex
Date:
March 2025
Details:
This report aims to provide an overview of the research and engagement activities carried out by partner organisations during phase one of the MSE REN programme. This includes reflecting on the experiences of participants who engaged in these activities and how effective these activities have been in contributing towards improving community engagement in healthcare research in Mid and South Essex. Examples of some of the activities which have been carried out by partner organisations include the use of new research and engagement approaches, community workshops, open discussions on experiences of accessing services, reflections on previous involvement in research projects, and sharing views on research.
Healthwatch Essex
March 2025
This report aims to provide an overview of the research and engagement activities carried out by partner organisations during phase one of the MSE REN programme. This includes reflecting on the experiences of participants who engaged in these activities and... [more]
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https://pexlib.net/?247829
Healthwatch Bromley
17th April 2025
Healthwatch Bromley, Enter and View Report, Chislehurst Neurological Rehabilitation Centre, 15 Selby Cl, Chislehurst BR7 5RU, 17th April 2025
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https://pexlib.net/?247826
The Patient Experience Library
Document title:
Raising Awareness of Abuse in Marginalised Communities
Source:
Healthwatch Greenwich
Date:
2025
Details:
Between April and May 2025, Healthwatch Greenwich, in partnership with the Greenwich Adult Safeguarding Board (SAB), delivered a pilot project to raise awareness of abuse and adult safeguarding among community groups in the Royal Borough of Greenwich. This collaborative initiative reflects shared priorities for both Healthwatch Greenwich and the SAB: to strengthen understanding of safeguarding and promote earlier recognition and reporting of abuse, especially within communities that may experience barriers to accessing support. The pilot aimed to test a new approach to increasing safeguarding awareness, explore how best to engage diverse communities in safeguarding conversations, deepen understanding of how safeguarding messages resonate across different communities, and how SAB can work more effectively with grassroots organisations to protect adults at risk.
Healthwatch Greenwich
2025
Between April and May 2025, Healthwatch Greenwich, in partnership with the Greenwich Adult Safeguarding Board (SAB), delivered a pilot project to raise awareness of abuse and adult safeguarding among community groups in the Royal Borough of Greenwich. This collaborative initiative... [more]
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https://pexlib.net/?247825
The Patient Experience Library
Document title:
What Your Patient is Thinking - Balancing empathy and information in cancer treatment
Source:
BMJ
Date:
9th June 2025
Details:
Georgina Johnson describes the compassion and support she received with a cancer diagnosis and getting the balance of information right
BMJ
9th June 2025
Georgina Johnson describes the compassion and support she received with a cancer diagnosis and getting the balance of information right
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https://pexlib.net/?247822
The Patient Experience Library
Document title:
Reform of the SEND system, What might the next stage look like and how can we build consensus?
Source:
Local Government Association
Date:
9th June 2025
Details:
Local Government Association, Reform of the SEND system: What might the next stage look like and how can we build consensus?, 9th June 2025
Local Government Association
9th June 2025
Local Government Association, Reform of the SEND system: What might the next stage look like and how can we build consensus? , 9th June 2025
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https://pexlib.net/?247821
The Patient Experience Library
Document title:
Working for patients, How improving the experience of patients with long-term conditions can deliver the Government's ten year health plan
Source:
Future Health - National Voices
Date:
2025
Details:
This research argues that understanding the experience of people with LTCs needs to be at the heart of the Government's plan. People with LTCs account for 70% of GP appointments and 50% of hospital activity. Understanding if these patients are feeling supported to manage their condition, able to access the care in the community they need, are avoiding complications with their condition, alongside their views on the usability and quality digital services, will be integral to assessing whether the three shifts are working in practice. The experience of patients within the NHS is captured through a wide range of national and local surveys. But measuring and acting on the experience of patients has been de-prioritised in recent years with a far greater emphasis placed on improving access to services and waiting times for treatment. This is despite there being extensive evidence that improving patient experience can improve the quality of care and reduce more expensive healthcare use. The lack of prioritisation of patients with LTCs, which worsened during the COVID-19 pandemic and after, coupled with fragmented data collection methods and other structural challenges means the current system is not set-up for success
Future Health - National Voices
2025
This research argues that understanding the experience of people with LTCs needs to be at the heart of the Government's plan. People with LTCs account for 70% of GP appointments and 50% of hospital activity. Understanding if these patients are... [more]
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https://pexlib.net/?247820
The Patient Experience Library
Document title:
Paving the way, a practitioner's guide to supporting an autistic young person's successful journey out of children's services into adult life
Source:
Local Government Association
Date:
9th Jun 2025
Details:
Local Government Association, Paving the way: a practitioner's guide to supporting an autistic young person's successful journey out of children's services into adult life, 9th Jun 2025
Local Government Association
9th Jun 2025
Local Government Association, Paving the way: a practitioner's guide to supporting an autistic young person's successful journey out of children's services into adult life, 9th Jun 2025
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https://pexlib.net/?247819
The Patient Experience Library
Document title:
Costs and complexity in care, The real drivers of high-cost placements for children in care
Source:
Local Government Association
Date:
30th May 2025
Details:
Placements for children in care costing over 0.5million per year are increasing in England, causing significant concern and financial strain on local authorities, with little improvement in outcomes for children.
Local Government Association
30th May 2025
Placements for children in care costing over 0. 5million per year are increasing in England, causing significant concern and financial strain on local authorities, with little improvement in outcomes for children
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https://pexlib.net/?247818
The Patient Experience Library
Document title:
Commissioning self-advocacy as a basis for effective co-production
Source:
Local Government Association
Date:
4th June 2025
Details:
Self-advocacy plays a critical role in supporting and promoting people's human rights. This resource provides information to support the commissioning of self-advocacy and peer-to-peer support for people with a learning disability and autistic people
Local Government Association
4th June 2025
Self - advocacy plays a critical role in supporting and promoting people's human rights. This resource provides information to support the commissioning of self - advocacy and peer - to - peer support for people with a learning disability and autistic people
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https://pexlib.net/?247817
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