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The Patient Experience Library
Document title:
What Your Patient is Thinking - Encourage me to take the rest I need
Source:
BMJ
Date:
1st May 2025
Details:
Ruth Segovia y Mayoral describes her experience of living with immune thrombocytopenia and why she wishes health professionals were able to prescribe rest
BMJ
1st May 2025
Ruth Segovia y Mayoral describes her experience of living with immune thrombocytopenia and why she wishes health professionals were able to prescribe rest
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The Patient Experience Library
Document title:
What Your Patient is Thinking - Finding wise hope beyond a cure
Source:
BMJ
Date:
14th May 2025
Details:
Catherine Shteynberg calls for health professionals to use clear language when delivering a diagnosis of incurable cancer
BMJ
14th May 2025
Catherine Shteynberg calls for health professionals to use clear language when delivering a diagnosis of incurable cancer
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The Patient Experience Library
Document title:
What Your Patient is Thinking - Finding the right treatment for severe depression
Source:
BMJ
Date:
2nd April 2025
Details:
Tony Frais found himself unprepared for the diagnosis of severe depression, and for the challenge of trying different treatments
BMJ
2nd April 2025
Tony Frais found himself unprepared for the diagnosis of severe depression, and for the challenge of trying different treatments
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The Patient Experience Library
Document title:
What Your Patient is Thinking - Please support families of those experiencing psychosis
Source:
BMJ
Date:
17th April 2025
Details:
This author describes what it is like to experience a loved one going through a psychotic episode and what support health professionals could have given her and her family.
BMJ
17th April 2025
This author describes what it is like to experience a loved one going through a psychotic episode and what support health professionals could have given her and her family
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The Patient Experience Library
Document title:
Pushed into Poverty, The cost of living on Maternity Leave
Source:
Maternity Action
Date:
May 2025
Details:
50 years after the introduction of maternity leave in UK law, paving the way for working women to be paid whilst they take this leave from work, these survey findings show that the current system is in urgent need of reform. The level of pay is insufficient to keep pregnant women and new mothers healthy and hampers their ability to care for their babies. The relative level of statutory maternity pay has fallen in relation to median incomes and the national minimum wage levels set by the government. Many women are working harder during pregnancy, borrowing money simply to live day to day, reliant on food banks and not eating properly themselves. Levels of anxiety and social isolation are worryingly high. The government needs to uprate levels of pay and ensure that women on lower incomes are not disadvantaged further, otherwise it will fail to meet its own missions of tackling child poverty, improving health outcomes and closing the gender pay gap.
Maternity Action
May 2025
50 years after the introduction of maternity leave in UK law, paving the way for working women to be paid whilst they take this leave from work, these survey findings show that the current system is in urgent need of... [more]
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The Patient Experience Library
Document title:
The impact of caring on housing
Source:
Carers UK
Date:
May 2025
Details:
This report is based on data from the Carers UK State of Caring survey - the UK's most comprehensive regular research into the lives and experiences of unpaid carers. Carers UK carried out the survey online with unpaid carers between June and August 2024. A total of 12,500 carers and former carers responded to the survey. State of Caring is a self- selecting survey, and the data is unweighted. The survey was promoted extensively amongst both carers and organisations supporting carers. It was shared on the Carers UK website, on Carers UK social media channels, and with Carers UK members, volunteers, previous survey respondents, campaigners, affiliates, Employers for Carers members, and other organisations including the Housing Learning and Improvement Network (LIN).
Carers UK
May 2025
This report is based on data from the Carers UK State of Caring survey - the UK's most comprehensive regular research into the lives and experiences of unpaid carers. Carers UK carried out the survey online with unpaid carers between... [more]
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The Patient Experience Library
Document title:
Pension Credit and Carer's Allowance - Smoothing the journey, combatting pensioner poverty and recognising unpaid care
Source:
Carers UK
Date:
2025
Details:
The Government decision to change eligibility for Winter Fuel Payments to those in receipt of Pension Credit only, has brought into sharp focus the need to change the processes by which older carers apply for financial support, as well as the need to increase payments for older carers facing poverty who receive little other recognition
Carers UK
2025
The Government decision to change eligibility for Winter Fuel Payments to those in receipt of Pension Credit only, has brought into sharp focus the need to change the processes by which older carers apply for financial support, as well as the need to increase payments for older carers facing poverty who receive little other recognition
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The Patient Experience Library
Document title:
Children's mental health services 2023-24
Source:
Children's Commissioner
Date:
May 2025
Details:
This report describes children's access to mental health services in England during the 2023-24 financial year, based on new analysis of NHS England data using the same methodology as the Children's Commissioner's office's last annual report, covering 2022-23.
Children's Commissioner
May 2025
This report describes children's access to mental health services in England during the 2023 - 24 financial year, based on new analysis of NHS England data using the same methodology as the Children's Commissioner's office's last annual report, covering 2022 - 23
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The Patient Experience Library
Document title:
Moored but still isolated, Addressing Barriers for the Bargees in West Berkshire - (Members of the Gypsy, Romany and Traveler GRT Communities)
Source:
Healthwatch West Berkshire
Date:
2025
Details:
This report investigates the healthcare challenges faced by the Bargee community in West Berkshire. The Bargee community are classed as seldom heard and this is mainly because this community have a completely different lifestyle to the majority of the population. Due to their mobile lifestyle, they often lack access to common amenities and information-sharing platforms. They do not access information in the same way as the general population, which leads to their exclusion from standard communication channels used by services and organisations within the area
Healthwatch West Berkshire
2025
This report investigates the healthcare challenges faced by the Bargee community in West Berkshire. The Bargee community are classed as seldom heard and this is mainly because this community have a completely different lifestyle to the majority of the population ... [more]
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Children's Commissioner
May 2025
Children's Commissioner, Children's views on assisted dying, May 2025
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